The PPA values the experiences of those living with pain and aims to work with patients in the development of PPA strategies and training.
- An interview with PPA Patient Representatives, Christine P and Louise Trewern with Alice Morgan (6 min)
- In the news: New Patient Rep on the Executive Committee (Louise Trewern joined Christine)
- Christine and Louise have launched a patient involvement group for the PPA - PIPPA. Please share with people and patients that may be interested in shaping and guiding the work of the PPA.
- Patient representatives contributed to the CSP Spotlight on Rehab webinars 'Self management' and 'Pain' with the Community Rehabilitation network. They are available to CSP members here.
- Christine has contributed to the development of the Therapeutic Interactions and Person centred care Skills (TIPS) programme with the PPA and the Health Innovation Network South London. As part of this work, Christine wrote an open letter to clinicians who provided 'routine' care in the first four years of her journey. This is an essential read!
At the start of the COVID 19, the PPA collated helpful online links to support people living with pain. The resources highlighted insights from people living with pain.
- Christine and Louise have written blogs to support patients and clinicians. Christine's blog 'Living well with pain' is an excellent resource, as is Louise's blog, hosted by a multiprofessional organistation Live Well With Pain.
- Joletta Belton, patient advocate collaborated with Jackie Walumbe and Diarmuid Denneny (PPA vice chair and chair) on a rapid review published in the Scandanavian Journal of Pain, 'Pain management programmes via video conferencing'.
- Natasha Lipman is a chronic illness blogger and has been working with Claire Campbell, PPA PRO on a series of blogsthat she has also narrated and made available via The Rest Room podcast.